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31
Mar
2025

Genetic Testing Firm 23andMe Files For Bankruptcy: What Does This Mean For Me?

On 23 March 2025 came news that genetic testing firm 23andMe has filed for bankruptcy following financial difficulties and concerns about data privacy. 23andMe started in 2006 and went public in 2021. However, it never made a profit. It struggled to convert customers who purchased its core product, an at-home DNA testing kit, into subscribers offering personalised feedback and wellness plans. In 2023, 23andMe was hacked affecting the personal data of 7 million users, resulting in a reported $30 million settlement bill. Then in 2024, it let go of forty percent of its workforce and stopped the development of its research and development programmes. Its recent decision to file for bankruptcy is aimed at procuring a sale. However, it leaves its 15 million users around the world questioning what will happen to their genetic data?

21
Mar
2025

Ethica Fertility Launch Event

Louisa Ghevaert had the pleasure of celebrating the Ethica Fertility launch event on 20 March 2025 at Barnby Street in London with other dedicated professionals in the fertility and family building space. Ethica Fertility's mission is to offer an innovative, more personalised approach to fertility care and reproductive health. Louisa was delighted to meet the team at Ethica Fertility, take a tour of their state of the art clinic facilities and learn more about their holistic approach to assisted conception and patient centric care. Ethica Fertility seeks to redefine fertility care and make fertility care more inclusive, effective and supportive, leading to better outcomes for patients no matter their race, gender, sexual orientation or family structure.

12
Mar
2025

Epigenetics In Human Reproduction

Louisa Ghevaert was delighted to attend the Nuffield Council on Bioethics workshop “Epigenetics in human reproduction” in central London on 11 March 2025. This event looked at the use and implications of epigenetics in human reproduction. It considered the inter-relationships between the reproductive environment, the epigenome, long-term health and assisted reproductive technologies. It went on to explore current and future scientific applications, ethical, legal and social implications. In doing so, it explored all sorts of important and complex questions and issues. How do you measure or control the environment? How effective may an intervention be and at what stage to optimise health, pregnancy and birth? How do you account for epigenetic responses (mechanisms that regulate gene expression without changing the DNA sequence) that differ between people? How reliable is epigenetic testing? How can you provide effective messaging? How do you address these issues from a policy perspective?

07
Mar
2025

Lessons To Be Learned By The Fertility Sector From the Infected Blood Scandal & Inquiry

Louisa Ghevaert was pleased to attend a Progress Educational Trust Event on 26 February 2025 "What Can The Fertility Sector Learn From The Infected Blood Scandal And Inquiry?". The Contaminated Blood Scandal was one of the worst health scandals in the UK from the 1970s - 1990s, resulting in thousands of deaths from infected blood transfusions and blood products. This event looked at the similarities between fertility (eggs, sperm and embryos) and blood, the findings of the Infected Blood Inquiry in the UK and the lessons to be learned across the fertility sector to ensure optimum patient safety and care. Given rapid advances in reproductive medicine and growing demand fro fertility treatment, it is more important than ever to maximise reproductive choice, optimise care and protections and make informed decisions about pathways to parenthood.

03
Mar
2025

Can Genetics Impact Fertility?

A medical study in the last year has found that genetic defects affect half of all infertility cases.(1) This brings into focus the significance of genetics for family building purposes in terms of fertility, conception, pregnancy and birth (and not just from a disease and health perspective). This can make it important to consider a range of genetic, medical and legal questions with geneticists, clinical and legal professionals. Should I undergo genetic testing to see if I might have difficulties with pregnancy or pass a genetic disorder on to my child? Should I undergo genetic counselling before conception? Should I get my embryos genetically screened before implantation? Should I undergo fertility preservation treatment? How can I maximise my chances of successful conception, birth or family completion? How can I maximise my prospects of having a genetically related child? Should I undergo prenatal testing? How can I legally protect my stored eggs, sperm and embryos? How can I successfully navigate fertility treatment law in the UK? What will happen to my stored eggs, sperm or embryos and my genetic legacy if I die?

25
Feb
2025

Declaration of Parentage: Resolving Birth Registration, Parental Status & Identity

We are currently seeing heightened levels of uncertainty and change around the world, ranging from economic challenges to seismic shifts in geopolitics and rapid developments in artificial intelligence, on-demand digital technology, genetics and DNA testing, precision healthcare and assisted reproduction. These can impact all stages of the life cycle from pre-conception through pregnancy, birth, family life and end-of-life care. This evolving landscape can create complex issues about family formation, personal identity, birth registration, legal and biological parenthood, genetic and health issues and relationships with family and relatives. In turn, this can require effective legal strategies to address issues about personal identity, genetic testing, legal and biological parentage, birth registration and family dynamics.

20
Feb
2025

Judicial Warning & Naming 0f Serial Sperm Donor ‘Who Fathered 180 Children’

In a recently published family law case In the Matter of D [2023] EWFC 333, His Honour Judge Jonathan Furness KC took the unusual step to publicly name a serial sperm donor and warn the public and vulnerable women seeking to get pregnant of the dangers of unregulated private sperm donation. This followed a highly contested 2-year legal battle, described as a 'nightmare' and 'horror story', between a female same-sex couple and a prolific sperm donor who applied to court to be named on the child's birth certificate, obtain parental responsibility and contact with the child.

11
Feb
2025

Genetic Testing: A Non-Biological Father, Mistaken Birth Registration & Parental Responsibility Void Ab Initio

The recent case of KL v BA [2025] EWHC 102 (Fam) brings into focus the complex legal issues that arose when genetic testing showed that a non-biological father was registered in error on a child's birth certificate. The central issue in the case was whether the effect of a declaration of non-parentage in respect of the non-biological father who had mistakenly been registered as the child's father rendered his acquisition of parental responsibility void ab initio (never having had any legal effect) or whether this could only be removed by court order.

27
Jan
2025

Genetic Testing, Political Uncertainty & Citizenship: Family Law In Focus

As we start 2025, the evolving realities of direct-to-consumer DNA tests, political uncertainty and demand for foreign citizenship are increasingly calls to action. As people seek to understand and address these challenges it can create complex inter-related personal and legal questions. Such questions are increasingly drawing together and necessitating solutions that require specialist family law expertise. Successfully navigating a path through these choppy waters can require expert management and bespoke family law strategies to address the implications of genetic testing, legal and biological parentage, an application for a Declaration of Parentage and rectification of a birth certificate.

23
Jan
2025

Posthumous Conception In Focus

The law governing posthumous conception in England and Wales sets out clear legal requirements designed to protect an individual's right to consent to the use of their eggs, sperm or embryos in treatment after their death. Eggs, sperm and embryos represent a special class of reproductive cells. They are very private and intimate, representing unique reproductive building blocks in human conception and an individual's genetic legacy. As such, the law is designed to prevent the unauthorised use of a person's gametes (or embryos comprising these) in treatment without their specific consent in life and after death. However, the prescriptive legal framework governing posthumous conception is not without its challenges in real life. What can be done to overcome these challenges?

23
Dec
2024

Secret Sperm Donation & The Early Years of UK IVF

An article in The Telegraph (1) on 20 December 2024 has reported concerns by two individuals about early UK fertility clinic practices, having recently discovered that they share the same secret sperm donor; a scientist in charge of the laboratory in the 1970's on the floor above UK IVF pioneer Patrick Steptoe's clinic at Oldham Hospital. Fifty years on, this has come to light after both individuals registered for DNA tests on Ancestry.com, reportedly raising concerns about whether their mothers were unknowingly impregnated without their consent with donor sperm.

25
Nov
2024

The Future of Womb Transplants

On 20 November 2024, Louisa Ghevaert attended a Progress Educational Trust event "10 Years of Womb Transplants: What Have We learned? What Does the Future Hold?". This fascinating event looked at the important and pioneering uterine transplant work that has been undertaken over the last 10 years, starting with the world's first successful human womb transplant and live birth in September 2014. Since then, there have been more than 135 uterus transplants around the world, including news of the UK's first womb transplant in 2023. In doing so, uterus transplants offer hope and greater reproductive choice for women whilst raising complex medical, legal and ethical issues.

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