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29
Jul
2021

Human genome editing in a fertility context: The World Health Organization’s framework for governance of human genome editing

People regularly ask what genomics has got to do with fertility (beyond genetic testing of embryos) and assisted reproduction law and policy. They are often puzzled about the link between genomic technology and fertility and why this is something they should think about or concern themselves with, instead equating gene editing technology with scientists in laboratories and pharmaceutical trials focused on curing cancer and conditions like sickle-cell and Huntington’s disease.
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22
May
2021

Why we need genomic and fertility law reform part V

Covid-19 is an effective mass disrupter with serious global morbidity and mortality implications. It is, however, just part of a wider complex picture that is rapidly evolving around us. With the continual development of powerful transformative gene-editing tools and scientific and digital technology we increasingly have the capacity to digitally programme, enhance and re-structure our genome and life itself. There is therefore an urgent need to implement intelligent genomic and fertility law reform and develop new policies and practices to deal with fallout from the Covid-19 global pandemic, changing geopolitics, evolving biopolitics, declining fertility levels and rapid intersection of genomics, digital, AI and assisted reproductive technology.
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14
Dec
2020

Fertility, Genomics and Covid-19

Progress Educational Trust’s one-day annual conference entitled “Fertility, Genomics and Covid-19” took place on Wednesday 9 December 2020. For the first time, it took place virtually with a varied panel of expert international speakers. It generated thought-provoking and wide-ranging debate about the impact of the Covid-19 pandemic on our health and the fertility sector, including: the changing role of the HFEA, challenges for fertility treatment delivery, ethical issues, effect on individual fertility and the fetus and the genetic resilience of women.
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20
Oct
2020

The UK’s New National Genomic Healthcare Strategy, Genome UK

On 19 October 2020 BioNews published a comment piece by specialist fertility and family lawyer Louisa Ghevaert which assesses the UK government's new National Genomic Healthcare Strategy, Genome UK. Louisa explains that this genomic healthcare strategy does not go far enough in repositioning future healthcare strategy, policy and practice. By not fully articulating and integrating human reproduction and fertility treatment into future genomic healthcare strategy, Louisa explains that it does not represent a truly cohesive approach in setting our genomic healthcare strategy 'over the next ten years' and beyond.
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